We are having another cool day for April again and tomorrow it may be even colder. The Forsythia is in bloom and the Daffodils are out. I love the Spring flowering trees and flowers.
Not much has changed with me. I am now continuously on 5 liters and trying to walk around more to strengthen my legs. I went down to 40 mg prednisone per day yesterday. The plan is to stay there for 2 weeks and then down to 30 mg/day. As long as the breathing continues to improve we will lower the prednisone. After 30/mg day the decrease will be much slower. The lower the prednsione the stronger I will get. I am staying very optimistic but I have my good and bad days. Next week I will meet with the transplant doctor here in NJ and hopefully he will have some good news.
Enjoy the Spring. Love, Michele
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