Well after that last encouraging news the doctor in Chicago called my rheumatoloist back and they talked for a long time, going over my file. The doctor said he just could not do the procedure based upon my history. So we are back to square one again.
We have increased my cytoxan to 150 mg a day and also increased the prednisone to 60mg a day. I was having oxygination problems and we are not sure if it is inflamation in the lungs or too much fluid. I am also on lasik, so you know what that means, I visit the bathroom a lot. But, the fluid is down and I feel much better. We will decrease the prednisone every 5 days to get back to 30mg a day. Hoping that the increase in the Cytoxan will prevent inflamaton in the lungs and we can continue to decrease the prednisone.
Other than that all is the same. I just keep plugging away and hoping we will find a study that will do the transplant.
I just keep smiling and never give up.
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